For those of you who have not already heard, Jason was diagnosed with multiple sclerosis this past January. A few weeks before we were married in September, he started having some odd symptoms which included having difficulty speaking and some trouble with fine motor skills on his right side. So after much to do and tests and visits with a few doctors we are starting treatment sometime in the next month.
Here are the details:
We cannot get a 100% positive diagnosis on what specific type of MS it is for five years. This is because the doctors need to see how frequently the attacks (officially called exacerbations but I hate that word, it sounds dirty) happen and how many lasting effects they have. But tentatively, it has been diagnosed as Remit-Relapse MS, which is most definitely not the worst kind to have.
Thus far, Jason has only had one set of attacks – the ones in September/October – and the lasting effects have been fatigue on the right side of his body when he overdoes it. As long as he gets rest and doesn’t get too stressed out, he is usually alright.
As soon as we get an all clear from our insurance company and work out how much we will have to pay for treatment, we’ll be starting up injections three days a week. If you know Jason, you know he hates needles, so this will prove to be interesting.
We’d appreciate your prayers about all of this. Emotionally, we are doing okay, just eager to start treatment and get back into a routine. However, this is something we’re going to have to deal with for the rest of our lives, and it pretty much sucks. We’ve also been told that there are some fairly strong side effects to treatment initially. If you have any questions, you can email me or message me or whatever and I will do my best to answer them.